The background (below): I was traveling down the freeway of immunotherapy at 60 miles an hour.. Upon discovering that the immunotherapy was attacking my liver and apparently causing difficutl side effects, Dr. Mashru threw us into reverse! He put the ummunotherapy on hold and started 80mg per day of Prednisone to focus healing on my liver .
Bullet Points: (1) The muscles in my neck and back are regaining strength slowly; (2) I walk with a walker using it as a prop so I can stand straight; (3) I still need tape to hold up my right eyelid; (4) I am on a no-drive order from Sherry and the doctor so Sherry has become my personal driver; (5) Life is very fulfilling in surprising ways.
The Rest of the Story: Kaiser Labs have drawn about half the blood in my body to do all the tests. The results so far have shown nothing significantly out of normal range other than the liver distress numbers (AST and ALT). Gladly, there neither the blood tests nor the ultrasound show any sign of hepatitis or other specific liver damage. I now have referrals to neurology and endocrinology to continue the search for the cause of the drooping eyelid.
I was warned that 80 mg of Prednisone per day could have major impact: headaches, buzzing energy levels, unexplained mood swings, sleeplessness, bloating, etc. None of these have happened, I am very glad to say.
I cancelled my trip to Boise and taught my Leadership Cohort class from the couch in our family room. It was pretty comfy, but I really missed the class side conversations and seeing our Schlender grandkids.
My other classes and responsibilities have gone on pretty much in normal. My energy levels are near normal and the walker allows me to prop my self and stand pretty straight.
Joseph Pfeiffer and Stephen Posey met in my Costa Mesa Leadership Cohort. They come from very different backgrounds but found a deep connection. They were called by God and the church to co-pastor Reality Santa Barbara I was very honored when they asked me to preach their commissioning service last weekend. We were really bummed when the difficult side effects required me to cancel the trip.
Then the pastor who was going to do the service had to cancel on Saturday. Stephen texted me to ask if it would be possible to record my commission. I quickly agreed and went to my basement office and recorded my message, the charge to Stephen and Joseph and the church and a decicatory prayer. What an incredible joy to hear that that pre-recorded message meshed exactly with what God was doing in their service.
Donn, our first born, came fo visit so we are having great conversations and looking forward to church on Sunday and a full on Super Bowl Party. It is so fun to hear Michael, his 8 year old call excitedly to talk to his :Poppy”
On Monday I will have a CT scan of my chest to check the melanoma nodules and an MRI of my brain Tuesday I will fly to San Jose for my Bay Area Cohort class. It will be low stress with people ferrying me everywhere and me sitting to do my all day teaching before I fly hom. Looks like I will not miss this class party!
Sherry continues to take care of me in wonderful ways. She is worried with my side effects, but also encuraged to see me getting stronger every day. She is showing her deep love in new ways which delights me to no end.