Year-end update and prognosis

Three doctor report

Dr. Frager, my radio-oncologist, released me from care since the melanoma in my brain is gone.  I remember the Green Mask and the multi-member team controlling the CyberKnife that did the ultra-precise zap on the two nodules.

Dr. Burt, my urologist, removed the bladder cancer with “ordinary surgery” a year ago. He just took another look and showed me the inside of my bladder: no sign of cancer visually. The urine cytology lab test confirmed: “Negative for High Grade Urothelial Carcinoma”

Dr. Mashru, my medical oncologist, after reviewing my last CT scan and blood tests explained that the infusions of Nivolumab every four weeks for treating the melanoma that metastasized into my lungs. The good news is that he expects to end those treatments in April, which is a year after they began.

I asked for clarification, and he confirmed that since there has been no activity in the cancer over the last 15 months of treatment, he expects it is dead. Follow up CT scans will monitor to confirm

No cancer?? I will admit that it is hard to wrap my mind around that prognosis. But with prayers of thousands and cutting-edge treatment, that seems likely.

UPDATE: I had my pre-infusion blood tests (all good) and conversation with the Nurse Practitioner. She was pleased to hear how well I was doing which led me to do a bit of research on response to nivolumab treatment for Melanoma, If I read this article correctly, the overall survival rate is 42% and the disease progression-free survival rate is 36%. Mine was detected early and even more importnatly covered with prayers of many.  

New News

Nicole & Colton are engaged!

Colton formally proposed and slid the ring on Nicole’s finger. This means two upcoming weddings: Joy and Nathaniel in late April and Nicole and Colton on July 1.

We had a Thanksgiving celebration – at Red Robin, of course!

Christmas in Kansas City

We are spending a week with Donn, Susan, Elizabeth and Michael through Christmas Day. We got a blizzard to highlight our time! You can see Michael’s sled trip in sub-zero weather here. Michael also went high to top the Christmas tree decorations as you can see here

Our visit will include a Saturday Chiefs game. With temperature in the low teens, wind chill in low single digits, Donn purchased Mobile Warming Heated Wool Socks. I get to use Elizabeth’s pair!

The visit will culminate with Christmas Eve and Christmas morning services at their church. I am excited that Elizabeth will be doing readings on Christmas Eve, but a bit disappointed that their children’s Christmas program occurred last week.

Visit to Spring Branch Cemetary & Wheatland

Sherry and I traveled to Spring Branch Cemetary, outside the church I grew up in and where we will be gathered to our fathers, to introduce Michael to his ancestors, going back to grandparents, great-grandparents, and great-great-grandparents!

His great grandparents
It was cold!
His great-great-grandmother
His great-great-great-grandfather

Then we drove south to Wheatland and had a marvelous lunch at Gigi’s Cafe.